Access to samples and data from the Northern Sweden Health and Disease Study
NSHDS (Northern Sweden Health and Disease Study) is an umbrella term for a prospectively collected biobank with related survey data. The sample collection consists of three subcohorts:
1. Researchers are welcome to discuss their planned studies with the contact persons below:
Head of section: Ulrika Morris Chair of the Expert Group for Cancer: Sophia Harlid Chair or the Expert Group for Cardiovascular and other diseases: Ingvar Bergdahl PI for the Northern Sweden Diet Database: Anna Winkvist Scientific Developer and Advisor with focus on Diet in Biobank Research: Maria Wennberg
2. Submit the application to the Section of Biobank and Registry Support (BRS) at Umeå University (UMU).
Send the form in the original word format to info.brs@umu.se.
Applications to external registers, e.g. quality registers
Different forms are used for different registers. The Section of Biobank and Registry Support provides advice and writing help.
Application for ethical vetting and the decision
We recommend that researchers contact the Section of Biobank and Registry Support before writing the application for ethical approval. Please contact us as early as possible. Contact: Ulrika Morris
Send the application to Etikprövningsmyndigheten.
The application for samples and/or data can be made prior to the application for ethical vetting.
Steering Group for the Northern Sweden Diet Database
The Section of Biobank and Registry Support obtains approval.
Access to OMICS data
The Section of Biobank and Registry Support obtains approval.
External registers
The Section of Biobank and Registry Support obtains approval.
Principal Investigators for sample collections/cohorts/registers
The study must be approved by the Principal Investigators for the sample collections/cohorts/registers. The Section of Biobank and Registry Support obtains approval.
5. BRS helps with other necessary documents.
Many studies require agreements between Umeå University and recipients of samples and/or data. BRS helps to formulate the agreements and mediates contact with the university lawyers.
6. The samples are handled by Biobanken norr.
If the study involves blood samples, additional agreements are needed with Biobanken norr at the County Council of Västerbotten. The Section of Biobank and Registry Support mediates contact between the researcher and Biobanken norr.
7. The Section of Biobank and Registry Support matches cases and controls in collaboration with the researcher.
8. Data and/or samples are delivered.
9. After analysis of the samples, send the analysis results to the Section of Biobank and Registry Support.
